Elis testing went perfectly. We will get results in a week.
I am still so very exhausted
Walking into a nightmare
Tonight is going to be a long night. Last week Eli had a seizure and had to be taken to Bronson, this is the first time I have ever seen him have anything like that and it scared me shitless. I have my entire life wrapped around this man and our baby. I just cannot handle the stress of seeing him so helpless. Tomorrow we are going to the hospital for further testing, EEG, ACAT scan, blood work, ect. They are going to do everything they can to induce another seizure, the goal is that if he can seize while they are mapping his brain, we might be able to understand where its coming from, what we can do about it happening, when it happens, and why it is happening. The information is so worth the risk, the scary part is just knowing he is going to have a seizure again. It kills me to know I cannot be right there at his side, but at the same time…I am not sure I could stand to see that happen.
what if this is something that will always happen?
I have been through so much medical bullshit, but never anything that effected my brain. Im just so nervous.
